8 Ageless Truths of Dementia Caregiving

As we travel our own unique journeys, most of us find that certain phrases or concepts take on the status of truth in our worldview. Our personal principles may not be identical to those of others, but we know what is true for us.

Below, I’ve shared a few of my own truths that I have adopted throughout my years of caregiving experience. Some are specific to dementia caregivers, but most are also applicable to other elder care scenarios.

My Principles of Dementia Caregiving

1. Learn about the kind of dementia your loved one has. The Alzheimer’s Association defines dementia as “an overall term for diseases and conditions characterized by a decline in memory, language, problem-solving, and other thinking skills that affect a person’s ability to perform everyday activities.” While Alzheimer’s disease is the most well-known type of dementia, there are many others. Vascular dementia, Lewy body dementia (LBD), Frontotemporal dementia (FTD), Parkinson’s disease with dementia, and mixed dementia are some of the most prevalent kinds, and each is characterized by a unique set of symptoms, diagnostic criteria, and changes in the brain. For this reason, it’s important that the physician treating your loved one (often a neurologist) is qualified to make a diagnosis, monitor their progression, and recommend strategies for managing symptoms. Learning about the type of dementia that your care receiver has (as well as their other health issues) will help you better understand their behavior and provide more compassionate care.

Be as flexible as possible.

2. Dementia patients’ moods, behaviors, and abilities often change not only from day to day, but also from moment to moment. If your loved one is having a bad day, don’t take it personally. Do what you can to keep them safe, healthy, and content while…

Continue reading on Agingcare for more ageless truths about dementia care:

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“An inspiring read for caregivers! Minding Our Elders is a series of stories about caregiving. But it is much more than that. It’s a book that helps us view aging and community through the lens of someone well versed in eldercare. Author Carol Bradley Bursack has been a caregiver for a neighbor and six elderly members of her family. These experiences made her the perfect person to interview and share the stories of friends and acquaintances. Through crisp writing and a sharp focus, we enter the lives of those struggling to care for loved ones with dementia and other age-related illnesses. As I read Minding Our Elders, I felt myself filling up with both appreciation and admiration for those who adopt the caregiving role. In addition, I was struck with the inherent value Carol sees in our elders. This is a well-written book that will stir your heart!” …Ann C